£1k · Collected in 2025
Founded
1996
Legal Status
Trust
Leader
MR CHRIS BROWNLEE BSC CENG MIEE
Help, encourage and assist those with PXE and their family members.Heighten the awareness of PXE amongst the medical community, support services and the general public.Link members with each other for mutual support and exchange of ideas.Provide information on the various aspects of PXE.Hold meetings to which all members, their families and friends are invited.
Year ending 2025
Income & expenditure over time
Europe