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£10k · Collected in 24
Founded
1997
Legal Status
Trust
Leader
Joanne Sarah Brazier
The Trust is giving families the opportunity to get together at a weekend away in May. The Trust has a closed group on Facebook providing an excellent way for parents to share worries and experiences. The parents on the committee have contact with a group in the US.The 9th International workshop on Dancing Eye Syndrome was held in March 2018.
Year ending 24
Income & expenditure over time
Europe