DandelignWe use a cookie to remember charities you favorite on this device. It's only set if you accept — see our Privacy Policy for details.
Founded
2011
Legal Status
Trust
Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.
Year ending 25
Income & expenditure over time
Europe