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Founded
1988
Legal Status
Charitable company
Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.
Year ending 24
Income & expenditure over time
Europe