Founded
1998
Legal Status
Year ending 25
Income & expenditure over time
Europe
Charitable company
Leader
Sharon Bates
Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.