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£58k · Collected in 24
Founded
2001
Legal Status
Year ending 24
Income & expenditure over time
Europe
Other
Leader
JULIE SHENINE WOOTTON
Support group for persons affected by DiGeorge Syndrome, VCFS and 22q11.2 deletion their families and carers, including provision medical information, support with medical issues, educational and social issues. Local and national activities. Education of medical profession and general public and promotion of research.