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Founded
2008
Legal Status
Charitable company
Year ending 24
Out of £100 Donation
go into Projects
Total
£577k
Europe
Support & advice via telephone helplines, information on diagnoses & treatment, putting families in touch with others with similar experiences through regional support groups, updates & ongoing contact via regular members newsletters, education events for families to meet & learn from medical experts, raising the profile of these conditions etc., etc.,
Total
£622k
Income & expenditure over time