£181k · Collected in 2025
Founded
2012
Legal Status
Charitable company
Leader
Joanne Frye
Patient AdvocacyInformational websiteDedicated HelplinePeer-to-peer online supportRegional patient meetingsAnnual national conferenceHealth informationFunded psychological supportE-bulletinsInternational collaborationSupport research
Year ending 2025
Income & expenditure over time
Europe