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Founded
2012
Legal Status
Trust
Leader
MR CHRIS BEDFORD-GAY
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Year ending 24
Income & expenditure over time
Europe
North America