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Founded
2012
Legal Status
Charitable company
Leader
Year ending 25
Income & expenditure over time
Asia
Europe
North America
Oceania
South America
Sandra Cowie
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.