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Founded
2013
Legal Status
CIO
Year ending 25
Income & expenditure over time
Europe
We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.