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£435k · Collected in 25
Founded
2014
Legal Status
Year ending 25
Income & expenditure over time
Europe
Charitable company
Leader
Charlotte Emily Williams
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'