£435k · Collected in 2025
Founded
2014
Legal Status
Charitable company
Leader
Charlotte Emily Williams
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Year ending 2025
Income & expenditure over time