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£0 · Collected in 25
Founded
2015
Legal Status
Year ending 25
Income & expenditure over time
Europe
Charitable company
Leader
DR MAFFEI
Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.