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£55k · Collected in 24
Founded
2015
Legal Status
Year ending 24
Income & expenditure over time
Europe
CIO
Leader
Heather Couch
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.