Founded
2016
Legal Status
CIO
Leader
JILL PRAWER
Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.
Year ending 24
Income & expenditure over time
Europe