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Founded
2016
Legal Status
CIO
To preserve and protect the health of patients with Dyskeratosis Congenita and otherTelomere Disorders, by providing and assisting in the provision of facilities, support servicesand educational materials. To advance the education of the general public, medical and scientific professionals in allareas relating to Dyskeratosis Congenita and other telomere disorders.
Year ending 25
Income & expenditure over time
Europe