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Founded
2017
Legal Status
Charitable company
Leader
JAMES EDWARD GREEN
Year ending 25
Income & expenditure over time
Europe
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.