Founded
2018
Legal Status
Charitable company
Leader
Susan Hawkins
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
Year ending 2025
Out of £100 Donation
go into Projects
Total
£1.6M
Total
£1.4M
Income & expenditure over time
Europe
Out of £100 Donation
go into Projects