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Founded
2018
Legal Status
Charitable company
Leader
Susan Hawkins
Year ending 25
Out of £100 Donation
go into Projects
Total
£1.6M
Europe
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
Total
£1.4M
Income & expenditure over time