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Founded
2018
Legal Status
CIO
Leader
ALEXANDRA INGLIS OCKENDEN
Year ending 24
Income & expenditure over time
Europe
The objectives of Softbones UK is to promote greater understanding of the causes, symptoms and treatment of HPP; raise public awareness of the symptoms, needs and related medical conditions of those living with HPP and assist people with HPP, their relatives and carers to get in contact with each other and to exchange information and experiences.