Founded
2019
Legal Status
CIO
Year ending 25
Income & expenditure over time
Europe
Leader
Alan John Thomas
A patients focused charityRaising Awareness of Ataxia.Sharing Ataxia, associated rare disease, movement and health information to Empower the patient, family member, carer of this Life limiting rare disease.Collaborating within these communities to advance and amplify the Patients voice within the health arena.Participating in fundraising events to allow this task