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Founded
2019
Legal Status
CIO
Leader
Nina Samantha Knight
The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms
Year ending 24
Income & expenditure over time
Europe