Founded
2019
Legal Status
CIO
a) providing information, support and advice to people living with the Condition, their families and carers; b) advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition;c) working closely with all stakeholders to facilitate the availability of effective treatments for the Condition. d) funding and supporting research to advance scientif
Year ending 25
Income & expenditure over time
Europe