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£94k · Collected in 25
Founded
2019
Legal Status
CIO
Leader
Allan David John Muir
Year ending 25
Income & expenditure over time
Europe
The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences