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Founded
2024
Legal Status
CIO
Leader
VANESSA RODRIGO JAKUBOWSKI
We help families of babies born with Blepharophimosis, Ptosis and Marcus Gunn Jaw Winking Syndrome in many ways. We host regular online meetings for families where they can share their stories and get information. We raise money to help families get crucial surgery when they cannot afford it. We build a community and provide support for these rare conditions.
Year ending 25
Europe